Items tagged 'parents-partners-carers'

Prophylaxis colouring book

29 August 2023

A colouring and puzzle book on haemophilia prophylaxis for a young child.

Overcoming Challenges

19 July 2023

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder.

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

VWD – all in the family

19 July 2023

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

VWD – Down the generations

19 July 2023

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Haemophilia – do you catch it?

19 July 2023

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

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Haemophilia Foundation ACT

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Haemophilia Foundation Australian Capital Territory acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.