Items tagged 'Parents & families'

Hopes for the Future

4 April 2024

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Poppa and Roman share a special bond

19 July 2023

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Living like a Swede

19 July 2023

Amanda (Mindi) Palm is an Australian community member and blogger who moved to Sweden for a few years. She explains…

Ben – a father’s perspective

19 July 2023

Ben and Kylie have a son, Ryder aged 4 with severe haemophilia A. Being the father of a small boy with…

Accessing treatment – Leah’s story

19 July 2023

What does access to the latest evolution of haemophilia treatments mean for a family? Leah shares her experience about new…

Haemophilia – all in the family

19 July 2023

Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and…

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Haemophilia Foundation ACT

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Haemophilia Foundation Australian Capital Territory acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.