Items tagged 'Von Willebrand disease'

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

VWD – all in the family

19 July 2023

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

VWD – Down the generations

19 July 2023

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Living life actively with VWD

19 July 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Susie ~ Disclosure and telling others

19 July 2023

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Perry and living with VWD

2 March 2022

Getting older, Personal stories, Von Willebrand disease

My name is Perry. I have von Willebrand disease type 2a. I'm in my 70s, and I didn't get diagnosed until I was in my late 50s. I live with the disease and I would like to talk about that.

Growing up with von Willebrand disease

14 December 2021

Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.

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