Items tagged 'Women & girls'

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Haemophilia – do you catch it?

19 July 2023

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Susie ~ Disclosure and telling others

19 July 2023

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

Jane’s story – genetic testing for haemophilia

19 July 2023

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Haemophilia – all in the family

19 July 2023

Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and…

Growing up with von Willebrand disease

14 December 2021

Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.

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Haemophilia Foundation ACT

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Haemophilia Foundation Australian Capital Territory acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.